We’re devoted to providing tools and resources for individuals and families affected by sickle cell disease and shedding celebratory light on one’s sickle cell journey.

FamilY

PATIENT

COMMUNITY

FOLLOW OUR JOURNEY

We are always welcoming volunteers to help us out on our initiatives. Volunteers and support the cause! For move information about our volunteer roles, visit not just you.ca.
Sickle Cell Disease is a genetically inherited blood disorder. The following diagram outlines how it is inherited from parents to their children. #sicklecellawareness #sicklecellscreening
✨ Join us for the final CELL meeting of the year on November 25! Since launching Cells at the start of 2024, we’ve seen our community grow into a powerful support network where stories, strength, and connection unite. For this last session, we
Hemoglobin is a protein in red blood cells that carries oxygen throughout your body. Maintaining healthy hemoglobin levels is crucial for overall well-being. Anemia occurs when you have a low level of hemoglobin, which can lead to fatigue, weakness,
“Early screening saves lives! Here are 5 reasons why talking to your doctor about Sickle Cell Disease (SCD) screening could make all the difference. #SickleCellAwareness #GetScreened #HealthMatters”
We’ve only got TWO more CELLS for the year, and we’ll be diving into the ins and outs of health insurance this month! We’ll discuss navigating the challenges of advocating for coverage and treatments for sickle cell disease. Have
Volunteering is at the heart of our community. At Not Just You, we’re grateful for the volunteers that have assisted us in our several initiatives and events, including The Kickback earlier this month. We could not have done it without your hel
Once you have taken the Hemoglobin Electrophoresis test as requested from your physician, you can pay attention the following results to assess screening. #sicklecellscreening #sicklecellawareness #sicklecelldisease
Wondering about how to get screened? Ask your physician for the “Hemoglobin Electrophoresis” test. The codes are as follows: CPT CODE: 83021 CCI CODE: 1.EE.60.GK.30 #sicklecellscreening #sicklecelltesting #sicklecellcommunity #sicklece

Always shed celebratory light

We want our organization to be an easily accessible, broad support network that educates, motivates, and celebrates individuals and families affected by sickle cell anemia/disease.

in the world today…

40%

Individuals who possess sickle cell trait reaches as high as 40 percent in areas of sub-Saharan Africa, the eastern Arabian Peninsula, and central India.

90%

In resource-poor countries more than 90 percent of children with sickle cell disease do not survive to adulthood.

73%

72.6 percent of family physicians believe that more education and clinical support tools would help avoid complications in managing the disease.

Read the stories of warriors around the globe.

Ufuoma, 24

Revée, 29

Christen, 24

Precious, 23

Anonymous, 19

Lovejoy, 25

BECOME a
SICKLE SUPPORTER.

The journey to eradicating the shame and stigma associated with sickle cell disease is one that no one can or should embark on alone. We all need to be involved in our communities, both locally and around the world, to support those affected by sickle cell. Join our efforts by contributing to our projects, every amount matters!

CONTRIBUTE TO OUR CAUSE

“As someone who’s spent their whole life around people with sickle cell, I’ve never seen the disease presented in this type of non-judgemental way before.”

Joshua, 22 - Edmonton, AB