Canada’s Sickle Cell Support OrganizationIt’s not just you.
Free peer support, therapy, care packages and education for people living with sickle cell disease and the families who love them. Led by people who live it, for warriors in every province.
Who are you here for?
I live with sickle cell
Peer support, subsidized therapy and comfort for crisis days.
Get support
I care for someone
Caregiver meetings, guides for parents and partners, and therapy for you too.
Caregiver support
I want to understand it
Sickle cell explained plainly, and how to get screened.
Start learning
I want to help
Give, volunteer, donate blood or write to your MP.
Get involvedSupport, education and celebration, coast to coast.
Peer support every month, online and around the dinner table.
Explore
Up to 24 subsidized sessions for Cells members and caregivers.
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Care packages for hospital stays, delivered in all ten provinces.
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A networking night that adds new donors to the stem cell registry.
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Dinners, brunches, blood donations and celebrations, in cities across Canada.
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Sickle cell, screening and family planning, explained plainly.
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Warriors and caregivers, in their own words.
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Help pass Bill S-201, a national framework for sickle cell.
ExploreOur partners and supporters
This is the year we take what once lived in whispers and bring it into community.
- 2019
- Founded in Edmonton by a sickle cell survivor
- 10
- Provinces where Bright Boxes have been delivered
- 24
- Subsidized therapy sessions available to each Cells member
- 28
- People joined the stem cell registry in one Cellular night
Sickle Stories
Ufuoma
Founder · Transplant
Before transplant, I spent my whole life struggling to breathe and in that moment I could breathe normally for the first time.
Revée
Transplant
I guess you could say I’m getting a second chance at life but this time I get to do it pain free!
Adedamola
Living with SCD · Healthcare
Sickle cell disease may have brought many challenges into my life, but it has also given me a sense of purpose and a direction to follow.
Precious
Diagnosis
I just didn’t feel like there was a safe space and intimate community to share my struggles with.
Osasere
Transplant
The bone marrow transplant was my lifeline to a life I prayed for.
Christen
Living with SCD
God has given me a purpose to do things specifically for the sickle cell community.
Canada is closer than ever to a national plan for sickle cell.
Bill S-201 has passed the Senate and second reading in the House of Commons. It’s now with the Standing Committee on Health. MPs need to hear that their communities care.
- Introduced in the SenateMay 28, 2025
- Passed the SenateNov 18, 2025
- First reading in the House of CommonsDec 11, 2025
- Second reading, referred to the Health CommitteeJun 16, 2026
- Committee study (where the bill is now)In progress
- Third reading in the HouseNext
- Royal AssentNext
On the calendar
Cells Meeting
Our monthly online meeting for people living with sickle cell and their caregivers. Members find the link in the member portal.
Cells Meeting
The last Monday of November. New members are welcome; register first to get the link.
Celebration is advocacy.
News and guides from our community.
DonationOct 16, 20263 min read
How Canadian Blood Services and NotJustYou work together for people with sickle cell
Registry drives, group donations and a shared goal: a donor base as diverse as the people who need it.
Mental HealthOct 15, 20262 min read
Free therapy for Cells members: inside our partnership with Bethesda Therapy
Living with SCDOct 14, 20264 min read
Winter with sickle cell: how to stay warm, hydrated and ready for crisis days
CommunityOct 12, 20262 min read
Vertex and NotJustYou: the partnership behind our community events
NewsOct 2, 20263 min read
Cells goes in person: inside CELLS.irl, NotJustYou’s peer support dinners
100 people. $100 each. $10,000 for families.
Every September, The 100 funds Cells, subsidized therapy and Bright Boxes for the year ahead.