In their own words.
Collecting the stories of warriors, caregivers and families is how we build a support network that reaches across borders, and how every journey gets a voice.
Before transplant, I spent my whole life struggling to breathe and in that moment I could breathe normally for the first time.
Ufuoma. Diagnosed at two, cured by a bone marrow transplant at eighteen, and the reason NotJustYou exists.
Read Ufuoma’s story
Revée
Among the first adults in Canada to be cured of sickle cell through a stem cell transplant.
Adedamola
A physician and a warrior, learning to be both patient and doctor.
Osasere
Eight months post-transplant and on the verge of being sickle cell free.
In loving memoryValissa
Motherhood with sickle cell, the most challenging and most beautiful chapter.
Emmanuel
Diagnosed at three months, raised between hospital visits and big dreams.
Precious
Not fully diagnosed until her first year of university.
Christen
Born three months early with sickle cell and cerebral palsy, and still here.
Lovejoy
Learning her diagnosis at seven, and learning to listen.
Afoma
Endless hospital stays, and a stubborn hope.
Michelle
Diagnosed at one, finding her own way to manage the cold and the pain.
Monica
Diagnosed at 38, and determined to find the resources adults deserve.
Your story could be the one someone needs.
Share it named or anonymously. We’ll help you shape it, and nothing is published without your approval.