The earlier the conversation, the better.
Sickle cell touches every kind of relationship. Advice from warriors, partners and therapists for the conversations that matter.
Start early
With friends and family, share your story early, especially the parts that matter in an emergency. When people know how to care for you, the invisible becomes visible.
Talk about genotype
In a romantic relationship, ask whether your partner knows their trait status. If they don’t, one blood test answers it.
Your timing, your words
There’s no perfect script. Choose a calm moment, explain what a crisis looks like, and say what support helps.
Listen first
Ask what a hard day looks like for them before offering advice. Their experience is the expert.
Learn the basics
Know the signs that mean hospital, not home, and keep their care team’s number handy.
Get screened yourself
If you’re planning a future together, knowing your own trait status is an act of care.
I just tell them from the beginning. You either run or you stay.
Read more
Screening & FamilyFeb 10, 20262 min read
Dating with sickle cell: when, and how, to talk about genotype
Earlier is easier. A practical guide to one of the hardest conversations, for warriors and the people who love them.
Screening & FamilyApr 6, 20264 min read
Planning a pregnancy with sickle cell disease: what to do before, during and after
Pregnancy with sickle cell disease is considered high risk. Planning early with the right specialists gives you and your baby the best possible start.
Screening & FamilyMay 21, 20263 min read
Sickle cell trait: what it means, and how to get tested in Canada
Most carriers feel completely healthy, which is exactly why so many find out the hard way. One blood test tells you where you stand.
An act of care, for both of you
If you’re planning a future together, knowing both your trait statuses is one of the kindest things you can do.