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NewsOct 8, 20264 min read
Bill S-201: what Canada’s proposed sickle cell framework covers, and where it stands
The Senate passed it in November 2025 and the House sent it to committee in June. Here is what it would require, and how to ask your MP to support it.
More news
NewsFeb 26, 20263 min read
NotJustYou holds its first Black History Month group blood donation in Edmonton
On February 21, NotJustYou’s team gave blood together at a Canadian Blood Services donor centre, and one donor marked a 15th donation milestone.
NewsJan 30, 20263 min read
NotJustYou celebrates seven years with The Afro-Jazz Experience in Edmonton
Live music from Melafrique and Slim Tyme, canapés by Iranti and a Canadian Blood Services table opened a year themed “From Taboo to Tradition.”
NewsNov 20, 20252 min read
Bright Boxes reach hospitals from British Columbia to Newfoundland and Labrador
In 2025, Bright care packages reached hospitals from Vancouver to Charlottetown. Here’s where they went, what’s inside and how to request a box.
Living with sickle cell
Living with SCDOct 14, 20264 min read
Winter with sickle cell: how to stay warm, hydrated and ready for crisis days
Cold air, wind and cold water can all set off a pain crisis. Practical steps to help warriors and caregivers get through a Canadian winter, from layers to a written plan.
Living with SCDMay 4, 20264 min read
How to be heard in the ER and at appointments when you have sickle cell
Our April Cells meeting asked a hard question: is my doctor even listening? Scripts, tools and Canadian standards that help warriors and caregivers speak up for care.
Living with SCDJan 15, 20263 min read
What a sickle cell crisis feels like, and when to go to the ER
Pain crises are the most common reason warriors end up in hospital. Knowing the warning signs, and having a plan, can save a life.
Treatment
TreatmentSep 24, 20264 min read
Gene therapy for sickle cell in Canada: what Casgevy is and where access stands
In its main trial, Casgevy kept nearly everyone free of severe crises for at least a year. How it works, what treatment involves and why access in Canada is still limited.
TreatmentSep 8, 20264 min read
Stem cell transplant for sickle cell: how the cure works and who it is for
A transplant replaces the bone marrow that makes sickled cells. It can cure sickle cell, carries serious risks and depends on finding a match, which is where donors come in.
TreatmentAug 20, 20264 min read
Hydroxyurea for sickle cell: how it works and what to expect
The daily medicine has been studied in sickle cell for decades. What it can reduce, who is offered it, why it needs regular blood tests and why it takes months to work.
Screening and family
Screening & FamilyMay 21, 20263 min read
Sickle cell trait: what it means, and how to get tested in Canada
Most carriers feel completely healthy, which is exactly why so many find out the hard way. One blood test tells you where you stand.
Screening & FamilyApr 6, 20264 min read
Planning a pregnancy with sickle cell disease: what to do before, during and after
Pregnancy with sickle cell disease is considered high risk. Planning early with the right specialists gives you and your baby the best possible start.
Screening & FamilyFeb 10, 20262 min read
Dating with sickle cell: when, and how, to talk about genotype
Earlier is easier. A practical guide to one of the hardest conversations, for warriors and the people who love them.
Screening & FamilyDec 4, 20252 min read
Your child was just diagnosed with sickle cell. Start here.
A first-year guide for parents and caregivers, from people who have been there.
Mental health
Donation
All Articles
27 articles
October 2026
- How Canadian Blood Services and NotJustYou work together for people with sickle cellDonation3 min read
- Free therapy for Cells members: inside our partnership with Bethesda TherapyMental Health2 min read
- Winter with sickle cell: how to stay warm, hydrated and ready for crisis daysLiving with SCD4 min read
- Vertex and NotJustYou: the partnership behind our community eventsCommunity2 min read
- Bill S-201: what Canada’s proposed sickle cell framework covers, and where it standsNews4 min read
- Cells goes in person: inside CELLS.irl, NotJustYou’s peer support dinnersNews3 min read
September 2026
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April 2026
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October 2025
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Latest
DonationOct 16, 20263 min read
How Canadian Blood Services and NotJustYou work together for people with sickle cell
Registry drives, group donations and a shared goal: a donor base as diverse as the people who need it.
Mental HealthOct 15, 20262 min read
Free therapy for Cells members: inside our partnership with Bethesda Therapy
People in Cells and their caregivers can get up to 24 fully subsidized sessions with Bethesda Therapy’s licensed therapists.
Living with SCDOct 14, 20264 min read
Winter with sickle cell: how to stay warm, hydrated and ready for crisis days
Cold air, wind and cold water can all set off a pain crisis. Practical steps to help warriors and caregivers get through a Canadian winter, from layers to a written plan.
CommunityOct 12, 20262 min read
Vertex and NotJustYou: the partnership behind our community events
Since 2023, Vertex Canada has sponsored the brunches, drives and celebrations where warriors and families find each other.
NewsOct 8, 20264 min read
Bill S-201: what Canada’s proposed sickle cell framework covers, and where it stands
The Senate passed it in November 2025 and the House sent it to committee in June. Here is what it would require, and how to ask your MP to support it.
NewsOct 2, 20263 min read
Cells goes in person: inside CELLS.irl, NotJustYou’s peer support dinners
In 2026, Cells sat down together in Edmonton, Calgary and Toronto. Here’s what a CELLS.irl dinner is like, and how registered members get invited.
TreatmentSep 24, 20264 min read
Gene therapy for sickle cell in Canada: what Casgevy is and where access stands
In its main trial, Casgevy kept nearly everyone free of severe crises for at least a year. How it works, what treatment involves and why access in Canada is still limited.
TreatmentSep 8, 20264 min read
Stem cell transplant for sickle cell: how the cure works and who it is for
A transplant replaces the bone marrow that makes sickled cells. It can cure sickle cell, carries serious risks and depends on finding a match, which is where donors come in.
CommunityAug 28, 20263 min read
World Sickle Cell Day and Sickle Cell Awareness Month in Canada: how to take part
June 19 is World Sickle Cell Day and, under federal law, National Sickle Cell Awareness Day. September follows with a month of awareness. Where the dates come from and how to join in.
TreatmentAug 20, 20264 min read
Hydroxyurea for sickle cell: how it works and what to expect
The daily medicine has been studied in sickle cell for decades. What it can reduce, who is offered it, why it needs regular blood tests and why it takes months to work.
Mental HealthJul 16, 20264 min read
Caring for someone with sickle cell without losing yourself
Burnout builds quietly when one person carries every crisis. How to spot the signs, share the load and plan for crisis days, inspired by this year’s Cells for Caregivers meetings.
NewsJun 19, 20263 min read
NotJustYou’s fourth World Sickle Cell Day Brunch is the last for a while
On June 13, warriors and sickle supporters gathered at CKUA in Edmonton for a buffet, a psychologist-led warrior panel and portraits by Be My Guest.
Screening & FamilyMay 21, 20263 min read
Sickle cell trait: what it means, and how to get tested in Canada
Most carriers feel completely healthy, which is exactly why so many find out the hard way. One blood test tells you where you stand.
Mental HealthMay 14, 20262 min read
Sickle cell and mental health: you are not imagining it
Chronic pain wears on the mind. Anxiety, low mood and isolation are common, and support helps.
Living with SCDMay 4, 20264 min read
How to be heard in the ER and at appointments when you have sickle cell
Our April Cells meeting asked a hard question: is my doctor even listening? Scripts, tools and Canadian standards that help warriors and caregivers speak up for care.
NewsApr 28, 20263 min read
NotJustYou volunteers step into leadership with new Directors of Volunteerism
New Directors of Volunteerism joined in March, and the NotJustYou Cup on April 22 introduced volunteer leadership positions. Five roles are open now.
Screening & FamilyApr 6, 20264 min read
Planning a pregnancy with sickle cell disease: what to do before, during and after
Pregnancy with sickle cell disease is considered high risk. Planning early with the right specialists gives you and your baby the best possible start.
NewsMar 12, 20263 min read
NotJustYou brings its Cellular stem cell drive to Vancouver for the first time
After Edmonton, Toronto and Calgary, Cellular’s fourth stop paired a networking night at Slate with Canadian Blood Services’ registry team and a keynote by Reni Odetoyinbo.
DonationMar 5, 20262 min read
How to join Canada’s stem cell registry, and why Black donors matter
A cheek swab today could be someone’s cure. One Cellular sign-up has already become a match.
NewsFeb 26, 20263 min read
NotJustYou holds its first Black History Month group blood donation in Edmonton
On February 21, NotJustYou’s team gave blood together at a Canadian Blood Services donor centre, and one donor marked a 15th donation milestone.
DonationFeb 12, 20264 min read
Why Black blood donors matter to people living with sickle cell
Many warriors rely on regular transfusions, and the closest matches often come from donors of similar ancestry. Yet just under 1 per cent of Canada’s whole blood donors identify as Black.
Screening & FamilyFeb 10, 20262 min read
Dating with sickle cell: when, and how, to talk about genotype
Earlier is easier. A practical guide to one of the hardest conversations, for warriors and the people who love them.
NewsJan 30, 20263 min read
NotJustYou celebrates seven years with The Afro-Jazz Experience in Edmonton
Live music from Melafrique and Slim Tyme, canapés by Iranti and a Canadian Blood Services table opened a year themed “From Taboo to Tradition.”
Living with SCDJan 15, 20263 min read
What a sickle cell crisis feels like, and when to go to the ER
Pain crises are the most common reason warriors end up in hospital. Knowing the warning signs, and having a plan, can save a life.
Screening & FamilyDec 4, 20252 min read
Your child was just diagnosed with sickle cell. Start here.
A first-year guide for parents and caregivers, from people who have been there.
NewsNov 20, 20252 min read
Bright Boxes reach hospitals from British Columbia to Newfoundland and Labrador
In 2025, Bright care packages reached hospitals from Vancouver to Charlottetown. Here’s where they went, what’s inside and how to request a box.
CommunityOct 30, 20252 min read
What’s inside a Bright Box, and why every item is there
Curated by a survivor and by warriors, for the moments that are hardest.
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